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#CFlife | See the top and most browsed pictures and videos about the #CFlife

Here goes nothing. Took my first dose of the newest FDA approved medication made to treat the underlying cause of cystic fibrosis. This drug has been shown to improve lung function and the quality of life for those of us with CF. All the Great Strides walks as a kid, the pancake breakfasts, the bake sales, the late nights of planning, the charity drives in elementary, the door to door trips around my small town asking for donations...this. This is thanks to all that hard work and all who have donated to the cystic fibrosis and shown support to all of us over the years. This is not a cure, but this is the closest thing we have right now and it works. Y’all, for the first time, I’m not anxious about my future. Being told you’re going to die from this disease younger than everyone else is never an easy thing to hear. Despite my good health and lungs, that thought of only living to my 40’s was always in the back of my mind. This drug gives us hope; hope that many of us gave up a long time ago. So, this is it. This is a big day for me and my family. Like I said before, I’m looking forward to 27 and all that it will bring, but right now, I’m looking forward to all the years after 27 as well. Love y’all. • • • • #cysticfibrosis #CF #breathe #symdeko #cflife #hope #asthma #CFRD #diabetes #justbreathe #bigday #27 #raredisease

Happy to be home🏡 Having a transplant makes working a struggle. Staying healthy is a full time job in itself. Thats why I am so thankful that I am able to work through Wheelin with CF. Not only can i raise awareness and be able to help the spiritus project but I can keep my head above water and not stress. Work from home and doinh what I love...ill take that any day💜 #wheelinwithcf #thankyouforyoursupport #cflife #transplantlife #cysticfibrosisawareness

All of the power without the squeeze and confinement. We take the squeeze out of your treatments, while allowing you to be fully mobile during therapy. Learn how AffloVest, with optimal oscillation technology can help you by stopping by our website! (Link in Bio)

Becoming a parent is one of the most emotional and overwhelming experiences for people, and a new cystic fibrosis diagnosis can be all-consuming. Cystic Fibrosis Canada has resources to help guide parents through this news, but in addition to official and medical advice, the perspective of people with CF can lend itself very useful during this time. What advice would you give to the parents of a child newly diagnosed with CF? ⠀ ⠀ ⠀ #parents #cflife #family #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness

Happy to be home🏡 Having a transplant makes working a struggle. Staying healthy is a full time job in itself. Thats why I am so thankful that I am able to work through Wheelin with CF. Not only can i raise awareness and be able to help the spiritus project but I can keep my head above water and not stress. Work from home and doinh what I love...ill take that any day💜 #wheelinwithcf #thankyouforyoursupport #cflife #transplantlife #cysticfibrosisawareness

“Like Kassandra, I’m adopted but I know that means something completely different to her. This is why I don’t speak for everyone who has this commonality, but it’s also why I bring awareness to it. We’ve experienced something that not many can relate to on such a deep and personal level. The first thing I want to know is someone’s story when they tell me that they’re adopted because no two journeys are alike. It’s a privilege to learn someone else’s story.” - Chand, Marketing & Events Planner at @PTI_biotech ••• It’s #nationaladoptionawarenessmonth and we’re featuring the #CF and #adoption experience of @thesassycfer_ who maintains an incredible amount of positivity despite her rocky journey. Read her story through the link in our bio! 🌹 • • • #CFAware #CFLife #CFAwareness #CFwarrior #cysticfibrosis

We will be missing the Heppes Holiday this year & especially seeing our midwest family @grantheppes & @jell llllycolllllllins ..... so seems like the perfect week for our Chicago Trip Part 1! It was a great trip....check out the first leg on the blog today! >>>Link in Profile<<<

BEF’s Educational TRU Heroes Cystic Fibrosis Nursing Program has supported numerous people over the years. If have CF, are a nurse, and are interested in applying, it’s simple!

Follow ✅ @normal_life_youtube - Can anyone explain why they put Heparin (a blood thinner) in a glass bottle you’ve got to crack open. The times I’ve cut my hand and blood just keeps coming !! It makes no sense to me 😂 - @cfaware @cftrustuk @cf_foundation - - - - - - #cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfighter #cysticfibrosissucks #cysticfibrosisfoundation #cysticfibrosiswarrior #cflife #cfawareness #cfawarenessmonth #cfwarrior #chronicillness #raredisease #65roses #sixtyfiveroses #disability #illness #invisableillness #spoonie #orkambi

Us looking down on 2018 & giving it a big 🖕 Certainly hasnt been kind to us. Luckily my Scope yesterday came back clear so my lungs are starting fresh for the new year, fungus free. Unfortunately Im facing a procedure to band some esphogal verices in the early part of 2019 but will face that when it pops up. For now, Im keen to get home from Brisbane & ride out the rest of 2018. #cysticfibrosis #cflife #cfwarrior #65roses #fighter #warrior #survivor #lungtransplant #donatelife #organdonation #recycleyourself #bowelcancer #cysticfibrosisawareness #isurvivedcancer #cancerfree

#Last90days has yet again ROCKED! DAILY I say “it’s not what you want right now, it’s what you want most” & when you think about it - that philosophy works for just about everything. The truth is this lesson is not about getting everything you want ... it’s about learning to have discipline, commitment, and focus so when the bumps come - they won’t throw you off too much... but encourage you to get up & keep going. Danny & I have embraced this season of commitment to change together- making the goals & hard work shared ... on any given day we could both be up/down/focused/distracted- or we could both be on opposite ends of the spectrum. Today my work resulted in a big win & Dan’s resulted in a big loss.... as I drove home & talked to a friend I wondered what this would mean: we haven’t had two such polar opposite moments during this part of our journey ... The result: genuine happiness for me & the desire to just keep walking for him. Marriage is choosing to not let that person’s potential die away.... don’t let their win mean it’s your loss & don’t let their loss be your reason to shy away from a win.... jump so far into the trenches together it’s hard to even tell who’s wins are who’s ... cheer like a crazy person for them..... CF is sinking its teeth in hard this week - but I am so grateful for the survival & fighter spirit it has breathed into our marriage ... through the mud.... Dan it could not have been easy to be so proud & yet I couldn’t even tell ... #bessettedaily2018 #last90dayschallenge

As y’all know, we are back from our cross country trip and cant wait to show you our adventures! Taylor and I will be uploading every Monday morning to raise awareness for Cystic Fibrosis and showing people that you can do anything you put your mind to. We hope you enjoy this next series of vlogs on our YouTube channel! • If you would like to follow our journey, click the link in our bio. The more awareness we spread, the closer we are to a cure!🏍 #transamericatrail #motorcycle #roadtrip #explorer #crosscountry #fourup #coasttocoast #travelvlog #traveling #vlogger #youtube #cysticfibrosis #cflife #cysticfibrosisawareness #saltysquad #sixtyfiveroses #sixtyfiveapparel

I miss the beach life right now! The salty air makes such a huge difference for me I feel like. Does anyone else notice they breathe better near the ocean? #saltlife #salt #saltyair #beachlife #cf #cfirl #cfsucks #cfawareness #fucf #cysticfibrosis #cysticfibrosisawareness #cflife #cysticfibrosisfighter #cysticfibrosislife #cysticfibrosiswarrior #cfwarrior #hypertonicsaline #65roses #sixtyfiveroses

Super proud CF mummy moment! Due to not naturally absorbing any fat or protein, Mason requires Creon prior to any food that he eats. Usually he has about 20 capsules per day, depending on what he eats, opened into apple puree. Today hes swallowed 3 whole capsules prior to his morning tea. Woohoo!!!! Swallowing tablets makes our life much easier considering some meds crushed are just terrible tasting! #soproud #dontwanttojinxhim #cysticfibrosis #fucf #cflife

I had to document this as a time when I felt like I might actually be doing something right. On this first day of Thanksgiving break no electronics have been on (they haven’t even asked!), Cullen has built a Lego set, we spent hours at the park, and now both boys are clean and Beckett is looking at books. Now for dinner, more books and bed. 📚😴❤️ . . #toddler #toddlermomlife #read #books #llamallama #cars #lightningmcqueen #curecfforhisbigbrother #curecf #cysticfibrosis #cfawareness #cfmom #cflife #irl #cfirl #toddlerlife #myboys #lovethem

Listen to Geoff Marcek, V.P of Engineering and Quality discuss the rigorous process an ISO13485 medical device development company goes through to ensure the quality and effectiveness of their devise: AffloVest Full Video through the link in our bio!

“Individuals with chronic illness and their caregivers experience higher rates of depression and anxiety, yet it’s something that we don’t talk openly about. It is 100% okay to not be okay all the time, and admitting that has made me feel more okay than I have in a very long time.” . . . 🌹On the blog today, I’m talking about an experience I had during this most recent hospital stay that made me finally admit that I needed help. Follow the link in my bio to read the post. 🌹 . . . #lungsnrosesblog | #cysticfibrosis | #mentalhealth | #anxiety | #cfirl | #cflife | #fightcysticfibrosis | #cfandanxiety | #medicalptsd | #ptsd | #chronicillness | #cysticfibrosislife | #curecysticfibrosis | #cysticfibrosisfighter | #cysticfibrosisstrong | #fightlikeawarrior | #itsokaytonotbeokay | #letstalkaboutit | #mentalhealthsupport | #thisisreallife | #cysticfibrosisandmentalhealth |

Check out Gunnar Esiason’s latest blog on disease disclosure. He believes the ability to talk fluidly about CF is essential for self-preservation and the root of advocacy. What do you think?

Albuterol relaxes muscles in the airways & increases air flow to the lungs.. Lily starts her treatment everyday with two puffs from her inhaler & so it seems totally understandable she should decorate it, right?! 💜 • #breatheeasy #saltygirl #CysticFibrosis #saltycyster #65roses #CF #sixtyfiveroses #saltysquad #CFirl #justbreathe #CFawareness #lifewithCF #cysticfibrosisawareness #saltisgoodforthesoul #CFstrong #saltysoul #CFwarrior #soulcyster #cureCF #curecysticfibrosis #CFlife #chronicallycute #wheezy #itainteasybeingwheezy #LisaFrank

✖️« Si ce que tu vis te semble difficile, n’oublie jamais d’où tu viens et ce que tu as dû traverser pour en arriver là. » ☀️ || Je suis retombée sur cette photo l’autre jour et j’ai fixé l’écran pendant bien 10 minutes avant de me rappeler que, cette petite nana là à gauche, c’est bien moi il y a 12 ans. Ceci est un rappel que, la vie peut être difficile, elle peut nous briser et nous mettre au défi dune manière que nous n’aurions jamais cru. Mais je sais aussi que nous avons le potentiel et la capacité de surmonter tout ce qui nous blesse ou nous fait douter de nous-même. Un miracle se produit toujours au milieu de la douleur. Même lorsque nous pensons que nous n’y arriverons pas. Malgré la douleur, la souffrance, et les obstacles je suis toujours là. Peu importe combien de fois vous pensiez que vous étiez trop faible pour guérir, peu importe combien de fois vous pensiez que vous ne pouviez pas avancer, vous lavez fait. Je l’ai fait et j’ai survécu. Ceci est un rappel que notre souffrance façonne notre perception de la vie, nos valeurs et nos priorités, nos rêves et nos objectifs. Soyez toujours reconnaissant pour chaque jour que vous vivez sans douleur, et même pour les jours où vous aurez la grippe, des maux de dos ou une cheville foulée. Acceptez-le, soyez heureux que ça ne dure pas éternellement et que ça ne soit pas une menace pour votre vie. Ceci est un rappel que vous pouvez être vaincu, mais pas détruit. Vous pouvez, et survivrez parce que la douleur que vous ressentez aujourd’hui, développe la force dont vous avez besoin pour demain. Crois que tu peux le faire, crois que tu le mérites et tu l’obtiendras ! 💪🏼 • Je t’ai détesté de m’avoir rendu si faible, mais si tu savais comme je t’aime aujourd’hui de m’avoir rendu si forte. À toi, à moi, à nous. Pour toujours et à jamais. Joyeux 12 ans de greffe à mes petits poumons 🎂❤️ #yougogirl #littlemisstransplant #doublelungtransplant #cysticfibrosis #warrior #strongwomen #CFlife #donatelife #organdonation #nevergiveup #65roses #vaincrelamucoviscidose #scars #staystrong #bepositive #neverforget

it doesn’t feel particularly strong or brave, no matter how many people tell you it is. ⠀⠀ •⠀⠀⠀⠀⠀⠀ to you, it is just life. it is just survival.⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀ i promise you, though, it is. it is brave and strong and incredible and inspiring and all those other things people tell you when you have yet another procedure, or try a new medication, or just do the things you do every day to take care of your body.⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀ i know that by now it feels routine, doing all these things that would make other people cringe. injecting insulin, taking 10 pills at once, nebulizer and vest and huff coughing, picc lines and ports and blood draws and all sorts of scans - they’re all just a part of life, right? ⠀ • i think that’s what makes you brave; the putting one foot in front of the other, the refusal to give up, the accepting what is hard at times and crazy at others and inconvenient always. ⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀ facing, day after day, the very thing that tries to kill you - that’s incredibly brave. ⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀ staring in the face of what ravages your body and saying “today, i win” - that is the very definition of strength. ⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀ let me affirm that in you today. i know, i know it doesn’t feel particularly spectacular. allow me to tell you that it is, that you are.⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀ you are strong and brave and incredible and determined and inspiring and a force to be reckoned with - i promise.

🤣😂😅 The worst is people/couples you know that can’t even handle the kids they have, yet they just KEEP having more. Mind boggling 🤯. “Heeeeyyyy how can I be even more financially stretched, stressed out of my mind, and get less rest?? Ohhhh I know, I’ll have another child!!!” -Society’s Norm #definitionofinsanity #absolutemadness #thanksbutnothanks #absolutelynot #itsaNOfromMe #childfreebychoice #childfreenotchildless #freetime😎 #idratherbesleeping #nonMom #nahImGood #nonconformist #nonconformity #notmyproblem #nokidsnoproblems #nokidsforme #marriednokids #otherhood #cflife #dinklife #respectfullychildfree #pathlesstraveled #yoloing #yoloyolo

An interesting weekend where a lot of our normal returned & our mindset shifted on this bump in the road.... sadly it did not change the medical facts: Dans lungs are back down. But I talk about why we feel up on the blog. >>>Link in Bio<<<

These 15 minutes feel eternal, but at least it will pay off! Let’s go CF fighters! 💪🏽 #cysticfibrosis #cysticfibrosisfighter #cf #cysticfibrosisawareness #cflife #cysticfibrosislife #lifewithcf #cfmotivation #motivation #cflungs #breatheasy

“Oh, the places you’ll go.” - Dr. Seuss ♡

♻ Thank you for those who donated their organs after passing away. And to their families who they left behind. Not only did you save my life but possibly the lives of up to 8 people. One organ donor can save 8 people from dying. Thank you for being my hero💜 #wheelinwithcf #cflife #transplantlife #awareness #donate #recycleme

If your a Gamer and especially if your a CF gamer get involved in my PS4 Livestream either in the stream chat or playing #BO4 with me. Click on the link in Bio link for more . See you there! FOLLOW✅ @normal_life_youtube - @cfaware @cftrustuk @cf_foundation @callofdutybo4 #callofduty - - - - - - - - - - #cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfighter #cysticfibrosissucks #cysticfibrosisfoundation #cysticfibrosiswarrior #cflife #cfawareness #cfawarenessmonth #cfwarrior #chronicillness #raredisease #65roses #sixtyfiveroses #disability #illness #invisableillness #spoonie #orkambi #gaming

One whole week of IV antibiotics complete ✅ I can really feel them working their magic. I feel so much better; my chest is clear and I feel “Normal” for once. One more week to go and I should be feeling like superman.....😂 - FOLLOW✅ @normal_life_youtube - @cftrustuk @cfaware @cf_foundation - / / / / / / / #cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfighter #cysticfibrosissucks #cysticfibrosisfoundation #cysticfibrosiswarrior #cflife #cfawareness #cfawarenessmonth #cfwarrior #chronicillness #raredisease #65roses #sixtyfiveroses #disability #illness #invisableillness #spoonie #orkambi

More silks training. The closest thing to flying. Really missed this after not being able to for a few weeks. #circus #aerials #strength #flexability #silks #yoga #workinprogress #improving #fucf #cysticfibrosis #cflife #performer #dancerlife #dancer

She’s ready for the holidays! 🎄🎅🏼🎁 She didn’t appreciate being dragged out of the house to get her hair done, but everyone knows a great hair color makes your whole outlook brighter. 😍 She loves her hair. We love her. That smile says it all. ❤️🌹 . #redhair #redhairdontcare #redhairgirl #sassy #salonday #holidayseason #holidaystyle #holidayvibes #feelbeautiful #loveyourself #ilovemyhair #holidayspirit #buildconfidence #loveyourlook #cysticfibrosis #cysticfibrosisawareness #cysticfibrosislife #cfteens #cflife #65roses #sixtyfiveroses #redlikeroses #asthma #asthmaawareness #chronicillness #chronicillnesswarrior #chronicallyill #chronicallyfabulous #specialneeds #specialneedskids

Saturday night is lit! Some decorate trees. Some don’t decorate. Me, I decorate o2 concentrators. #cflife #gottakeepitlight #seewhatididthere #itsbeginningtolookalotlikechristmahanukwazika #warmstheroomupnicely #newannualtradition #notalightingexpert #mattwouldapprovetho

Anddd real life continues. I had an amazing time at the trip to the efteling, the world of wonders, with my two wonders. I didnt do my treatments as I am supposed to do though. So I am taking this moment to realize I need to keep it up! #worldofwonders #efteling #trip #backhome #treatments #startingover #keepongoing #keepitup #rethinking #realization #realize #cflife #cysticfibrosis #cffighter #cfwarrior #motivation #motivate #advocate #strongwoman 💪

My boy is amazing. #cf #cflife #cfwarrior #cysticfibrosis

The past 24 hours has been crazy!!!! I had the #risingstars2018 for the #wnycff I did a speech there with my sister from another mister, Mary Padasak. Today I left work early to do a follow up PFT test. Im officially exhausted from #cysticfibrosis lately, but I am very happy about #wnyrisingstars2018 and the fact that #cflife has shown me so much.

Happy Friday Guys! Today’s #FridayFavorite is up on the blog.... with a potential Black Friday Idea.... check out how I tell my life story on my wrist! >>>Link in Profile<<<

On this week’s Breathe In, Meredith Gaito joins @Esiason17g and The @SaltyCysters. Meredith chats about her experience running the NYC Marathon with #TeamBoomer and how exercise is a vital part of her life! She has also directed a cystic fibrosis documentary currently in post-production called, “Breathing on Everest”.

47 years with cystic fibrosis. 12 years post double lung transplant. Day 92 home with Hospice. Blessed every single day. #cf #cflife #cfwarrior #cfnutrition #cfsucks #cffamily #doublelungtransplant #lungs #hospice #hospicelife #hospicecare #chronicrejection #donatelife #facesofcare #donateblood #donateplatelets #donatehair #recycleyourself ( #📷 @_marcysawyer )

“Sometimes what appears to be a setback is Gods mode of elevation.” 🙏🏻💯 - - #cysticfibrosis #fightforacure #cf #photography #cysticfibrosisphotographer #cflife #setbacks #upliftingquotes #deepquotes #cfsucks #cysticfibrosisawareness

Got my news Meds!! Im so excited 💕💕💕 #cysticfibrosis #symdeko #cflife

What a FUNdraiser! Our bodies ache, but our hearts are full! 💙 Thank you @cflifestyle for hosting such an amazing Knockout CF event here in Boston! A special thanks to @lungs4lovey for sharing her #CF story of conquering her double lung transplant and snapping a photo with us! 🌹 • • • @everybodyfights #knockoutCF #strolo #FightCF #hurtsogood #strengthinnumbers #workhardplayhard #girlpower #womenwhobox #womenboxing #womensboxing #CFfundraiser #CFLF #CFLife #CFwarrior #CFwarriors #CFadvocate #CFawareness

We all hear too many excuses from people everyday. If you believe it, you can become it. — Even the word impossible says ‘I’m possible’.

For years I dreamed of her and then suddenly, on this very day one year ago, she appeared. High blood pressure, induction, 28 hours of labour, an epidural and forceps... there she was. Matilda Ruby ❤️ This past year has been filled with so many things I wasn’t prepared for, twists and turns I never saw coming. In all honesty though, I also never expected to be this blessed. To know that someone like her chose me is more than words could ever describe. You are the love of my life Mattie ❤️ Happy Birthday 😆 . . . #mattieroo #babygirl #babygirlstyle #littlegirl #babies #babieswithstyle #babiesofinstagram #candidchildhood #daughter #loveofmylife #mamasgirl #mamagirl #uniteinmotherhood #birthdaygirl #birthday #1stbirthday #timeflies #shopsmall #smallshop #smallshoplove #pursuepretty #cf #cflife #cfbaby #cysticfibrosis #cysticfibrosislife #cysticfibrosisbaby

How a #partnerwod looks like in #omcf.. A day to remember again... #nsv.. My first 4 rope climbs.. Yay.. Then obviously i slacked.. 22 mins.. I did 12 rounds.. Digested all and wrapped up with 300mtr run in the end. Phew.. #morepower #lovelyplace #community #crossfit #hiit #betterthanyesterday #soretodaystrongtomorrow #cflove #cflife #gratitude #hangclean #boxjumps #startyourweekendstrong #frightfulfriday

Smells like chicken nuggets in this thing. #cflife #nuggs

You guys, I’M HOME! 🎉❤️😄 I’m back to doing treatments in my own comfy chair with my own Vest. I’ll get to shower without wrapping my arm in plastic and tape. And tonight I’ll sleep in my own bed, with no nurses coming into my room at all hours of the night, and... NO BEEPING! But most importantly, I’m back where I belong, with the people I love the most. There really is no place like home. There are so many things I want to tell you about the last couple weeks, but for now, I’m going to get settled in, relax, and enjoy the company of my loves. . . . . #cysticfibrosis | #hospitalstay | #homesweethome | #myloves | #feelingsomuchbetter | #happy | #homewhereibelong | #cysticfibrosisfighter | #cflife | #cfirl | #cysticfibrosisawareness | #cysticfibrosissucks | #hospitalizations | #fightcysticfibrosis | #weneedacure |

Medical Update Part 2: after talking to the doctor this morning (11-15-18) what happened to put me in the hospital was Co2 poisoning again, I guess the breathing tests that Florida hospital did on me Monday over exerted my lungs and I was inhaling more than breathing out and it just really effected me the day after (Tuesday). As far as the stiff pain in my side is a huge pocket of gas that is just sitting there and hindering my breathing. The swelling I posted was just that the IV burst in my arm and it swelled up but has reverted back to normal since and is now just bruised. #chronicillness #cysicfibrosis #cf #cflife #chronicillnessawareness #transplant #cysticfibrosisfighter #invisibleillness #lungdisease #lungtransplantsurvivor #65roses #lungtransplant #cysticfibrosisawareness

Medical Update Part 1: As you may know I am in need of another Transplant and my Hospital finds me to high risk of a patient to perform one on me, nothing against my hospital, they are only doing their job and going by their guidelines and practices. I did have an evaluation with Orlandos Florida Hospital this past Monday and unfortunately due to my low weight and risk of antibodies, they dont feel confident in Transplanting me. However I wont let this set back deter me from my journey and I will just push forward to the next day and the next hospital, in Florida or out of state til I find the hospital that will have the hope and the faith to give me this new chance at life. #chronicillness #cysicfibrosis #cf #cflife #chronicillnessawareness #transplant #cysticfibrosisfighter #invisibleillness #lungdisease #lungtransplantsurvivor #65roses #lungtransplant #cysticfibrosisawareness

Have AffloVest, will travel!” Rachael “loves being able to do treatments AND AffloVest in the car when they travel.” Thanks for sharing Rachael! Share your photos or videos with us by tagging us with #AffloVest Therapy that fits into your life, not the other way around

On this week’s CF podcast, we are throwing it back. @youcannotfail interviews his mother, Mary Cahill. They chat about what it’s like to raise a child living with CF. She encouraged him to play sports and live a healthy lifestyle all the while treating him the same as his siblings.

Interested in big city races? Register to run with #TeamBoomer in the @nyrr #UnitedNYCHalf or @ChiMarathon in 2019!

this is my (beautiful) body.⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ this is my two-weeks-in-the-hospital, restricted-movement-after-surgery body. ⠀⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ this is the body that i starved, purged, abused, and hated for so many years. ⠀⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ this is the body that wears scars like memorials of all the times it won over whatever tried to end me. scars from life-saving stomach surgery when i was just a few hours old, scars from when the pain inside was so great i carved it unto my skin, scars from volleyball court burns and rafting the nile and crashing my car at seventeen.⠀⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ this is the body that has fought through a million sadnesses, that has carried me on hundreds of adventures; this is a body that has survived, one that has thrived. ⠀⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ i struggle all the time with body image; how my ribs stick out at funny angles because of scoliosis, how a little skin folds over my tummy scar, how there are rolls when i scrunch over. sometimes i look at this body and cannot stand it. ⠀⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ but today, when i look at my body, i love it so much. today when i look at my body i don’t see all the supposed ugliness i used to obsess over. right now, i see a warrior. i see someone who has lived, despite all odds. i see someone who has loved and been loved so deeply. i see someone who has worked so hard. i see an incredible, squishy, persevering, badass body. ⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ two years ago i never would’ve imagined posting something like this. 6 months ago i would’ve been way too afraid to actually hit the send button. and here we are. ⠀⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ society tells us our bodies have to be a certain way, and if they aren’t, they they are wrong. well i am here to remind you all of something - THERE IS NO WRONG WAY TO HAVE A BODY. i wish i could hold your hands, look you in the eyes, and tell you this: your body is beautiful, but it is so much more than that. it is amazing. it is your home. it is the vessel in which your soul has made its dwelling. ⠀⠀⠀⠀⠀⠀⠀ •⠀⠀⠀⠀⠀⠀⠀ this is my (cystic fibrosis) body. this is my (eating disorder recovery) body. this is my (beautiful) body.

Jacob is #trending up that is! PFTs up! Height up! Weight up! When Symdeko is approved for his age group we will discuss switching from Orkambi! Now we are exploring Nashville! #vanderbilt #cysticfibrosis #orkambi #symdeko #cfmom #cflife #gains #momlife #momblogger #cfawareness

💜 CF UPDATE 💜 . We finally gained weight!! 🎉 So no g-tube talk! . Had a really good session with her psychiatrist 🙌🏻🙏🏻 . She’s had a really bad cough, and PFT’s weren’t good and didn’t improve with a treatment, so she’s on an antibiotic, and a snack was added in between breakfast and lunch at school because she’s starving by the time first period is over 😂 . After her appointment we went shopping at Costco for said extra school snacks.. . Then we had FPU! So good! So grateful that this was placed in our path. We’ve learned so much, and have so much hope for our future! 🙌🏻 . . . . . #cysticfibrosis #cfmom #cfupdate #mamasgirl #gwenniethepooh #cflife #brunnemannpartyof5 #momofteens #teenmom #warrior #fighter #cyster #cfcommunity #joyfulmamas #momlifebelike #momofteensandtoddlers #momlifeisthebestlife #momminsohard #chronicillnesswarrior #myhero #mompreneur #ingodshands #continuouslyblessed

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